I can't believe it has been 3 weeks. 5:45 pm. 3 weeks is not very long but it feels like an eternity since I have held you. Work went well, everyone was so nice. I am lucky to work where I do. I still have some of your pictures up there. It makes my day to see your smile. Coming home was the hardest part. I really didn't know what to do with myself. So I called people and bothered them. I went and sat on the couch wishing you were there. Now I am sitting by the fire with Sadie. She is still looking for you. I gave someone a very special gift today, it included a picture of you. I knew she would appreciate it as much as me or Grammy would. When she opened it she cried. She cried because she loved you so so much. I know it meant a lot to her. You will always be in her heart. And many others. I don't know if I told you yet, but Daddy and I ordered a beautiful headstone for you. Someday, Daddy will be side you and I will be above you at St. Mary's. The headstone has all 3 of our names with yours in the middle. Above your name are 2 bumble bees. The company promised us that it will be ready by Christmas. Mr. Ajak gave us a temporary one for now, but you deserve something big and beautiful. I look forward to seeing it when I visit you. I love you tiny! Love, Mommy

non616

15 years ago

I'm sorry for your loss. RIP Little Man

Hi Tiny....Thursday will mark 3 weeks since you left us. I miss you more and more each day. Sometimes the pain is almost unbearable, but then I tell myself you are okay, you are peaceful. I got the very special bumble bee charms I ordered today!! One for me and one for Grammy Cracker. They are absolutely beautiful, just like you. I can't wait to get it put on my charm bracelet. I am also going to have the silver baby bootie charm with your name on it put on the bracelet. Grammy got that for me when you were born. It is shaping up to be a wonderful LUKEY bracelet. I have to go back to work tomorrow. I'm nervous, mainly because I know you wont be here at the end of the day when I get home. I need to get back into a routine though. I know you will be with me to help me through it. I love you so much Lukey! It isn't the same without you. Give Noah a hug for me and tell him I love him, too. Goodnight baby. Mommy loves you.

I always told you that you were my special boy. Always smiling and showing us your love. You always worked so hard for us, you tought us more than we ever coulld have begun to teach you. Grammy Cracker will always love and miss you, and I'll always talk to you every day. You are my shining star, there is none brighter. When I wish upon a star, it will be to wish you are happy little one, in God's loving arms. You are absoLukely the best little guy Lukey. I miss you every minute and cherish every moment that we were together. Love you baby, Grammy

Kara Below are the words to another one of my favorite Contemporary Christian songs. It is sung by Cindy Morgan and it is a beautiful song about how wonderful heaven is compared to the struggles we must go through here on earth. But yet we have a job to do on earth and we must complete it. The song is a wonderful description of heaven and I think this is what heaven is like for Luke! I Will Be Free - Cindy Morgan The mountains are steep And the valleys low Already I'm weary But I have so far to go Oh, and sorrow holds my hand And suffering sings me songs But when I close my eyes I know to whom I belong Who makes me strong I will be free I will be free to run the mountains I will be free Free to drink from the living fountain Oh, I'll never turn back 'Cause He waits for me Oh, I will be free A wise man, a rich man In pauper's clothes A shepherd to lead us Through the land of woes Though many battles I have lost So many rivers yet to cross But when my eyes behold the Son Who bore my loss, Who paid the cost I will be free I will be free to run the mountains I will be free Free to drink from the living fountain Oh, I'll never turn back 'Cause He waits for me Oh, I will be free Oh, and I'll dance on silver moonlight And I'll walk through velvet fields Oh, and I'll run into the arms The arms that set me free I will be free I will be free to run the mountains I will be free Free to drink from the living fountain Oh, I'll never turn back 'Cause He waits.... I'll never turn back Don't you ever turn back Because someday, someday we're gonna see We will be free Love Bonnie Berzonski

My Littlest Angel Lukey, There isn't a day that goes by that I don't think of you. Oh how I miss the snuggle time! How much do I love you? This much! How much is this much? More than you could ever know! How are the wings and halo are fitting? You always had them in my eyes. What a special boy you are! I am positive that you continue to touch others with your baby blues and beautiful warm smile. I probally never told you this Lukey but, I collect little children angels and I found one to add to my collection that resembles precious you. Jaden helped pick him out and named him Lukey Angel. You will forever be in our hearts. Live, love, and laugh often! Until next time............ Love, Erin

Luke and family. I too lost my little boy this time last year, he too was special and very much loved always will be. Both our boys will be watching over us and be proud at the strength we are having to find each day just like we are proud of everything they accomplished in there short little lifes. Our angels will always be in our hearts and memories. I won't say it gets easier as it doesn't you just learn to take each day at a time. Your faith will keep you going, just ask God each day to replace the sorrow in your heart with joy'. Luke, be happy and free.

Hey there Lukey, I was thinking of you a lot yesterday on my plane ride back from San Francisco. I had a window seat so that I could see the beautiful view below. We went through a few clouds and I thought of you, as has been said, bouncing around the clouds in heaven. I wondered what you see from where you are, what you are thinking, what you are doing. I really miss going to see you at your house every week. Once in a while when I'm flipping through my schedule, looking for the right date, your name will catch my eye and I wish that I could still come and see you. You always brightened my days with your smiles, especially when I had you on your belly (or sometimes your, "GQ pose"). Miss you bunches. Love, Mary Ann

Good Morning Lukey. I came downstairs this morning and for the first time since you left I sat on the couch and tried to put your favorite show on- Jojo's Circus. But the TV wouldn't cooperate. GRR. Made me kind of mad.....but then I realized if it was on I probably would have cried. I miss you so much it hurts. I think about you constantly and want so badly to hold you and see your smiles. Life is not the same without you and I hate it. Peg took me to the Good Grief Center yesterday and I got some more books to read. The lady I talked to told me she lost a husband a year and a half ago so she understands what I am going through. Honestly Lukey, I wanted to punch her in the head! She doesn't have a freakin' clue what I am going through! But, I guess she was trying to help. I also feel like anyone who didn't know you and your story couldn't possibly get it. You were such a special little man. I feel like I have a whole in my stomach. Daddy's co-worker and good friend Jane gave him something Very special yesterday. You know how I like those Tiffany style lamps? She got us a Tiffany style Bumble bee ornament. It is SO BEAUTIFUL! For now, I have it hanging on the door to the china closet. If we put up a tree for Christmas, we can out it on there. Not sure yet if we are going to "do" Christmas this year, other than go to church. I went to church Sunday- the first time since your funeral. That was hard, But I got through it b/c I know you were with me. I love you Lukey. I miss you. Love, Mommy

Tiny Wee Tiny Wee, How Do You Do? Tiny Wee Tiny Wee, I love you! Oh, how I miss saying that to you each morning! I haven't been able to go into your room the last few days. It makes me too sad. Its hard to do a lot of things. But then I remind myself that you are buzzing around and playing like you should have been able to do here. What is Heaven like, Lukey? Please visit me in my dreams and share it with me. Love, Mommy

Luke, This song was playing when I saw you, and from now on, it will always remind me of you. Despite the fact that you left this world at such a very young age, you touched so many people. I wake up each morning, and I think of you and again each night before I go to bed, I include you in my prayers. I just wanted you to know that I was thinking of you again today.

Luke, My favorite memory is after one of the scopes we did in the operating room with an admission to the PICU. I dropped off a big balloon that, when tapped, sings (loudly) "Don't worry, be happy." Whenever I saw you after that (and much to the chagrin of the PICU nursing staff) I would smack the balloon and sing along, "Don't worry, be happy." You and I both had big grins, making the balloon worth every penny. Somehow the message of the balloon seems more relevant now as your life and memory remind us of the true priorities in life and that we should worry less and be happy more. I'll never forget that hallmark Lukey smile! Todd (Dr. Otteson)

It is hard to believe that you are gone. Gone. The word makes it sound sooo... distant. I know that you aren't far away Luke. I know in my heart when you are with me. You will swim in my soul as it grows old. For you are a spectacle to the Fox Chapel community. There truly are no right words to console those that you left behind. I can't even be consoled by my own words. Thank you for staying with me my dearest,Your friend, Jessica

Lukey: From the day you were born, you were fighting. And it has been said over before that the things you went through in your time with us here on Earth was more than most people can expect in a lifetime. I believe you have taught us all lessons in many ways through your fight. Lessons of strength and courage, of love and compassion… You have shown us that in times of suffering people will rally to give help and assistance where they can. You have shown us that communication does not only come through words but also interactions and actions. You have shown us what unconditional love means. You have been someone who has touched us in ways that are unending. Your smiles, your fight, your courage will live in my heart forever. These days’ people look for Hero’s in sports icons and film. You and your Mommy and Daddy are my Hero’s. We will never forget what you have given us in your short time here. I look forward to seeing you again one day when you and the other dearly departed can teach us even more. I love you.

Luke, I don't even know how to put into words how much this world misses you. But, since it's too late to call and wake up your friend, Jessica, to help me....I will try. I keep you in my heart by stopping every day on my way into school, right at the place that I kissed you during the Halloween parade last year!! You were just too cute in your lion costume. I can't think of a better costume for you, because you were tough like a lion!! Your mommy is coming back to work next week and I promise you that I will do all I can to help her and make her smile. Until the next time I write to you....know that every person whose life you touched is missing you and hoping that we can continue to be the kind of people that you would be proud to call your friend....love you baby!! xoxox/aunt mj

Lukey... I was putting Keegan to bed last night and we were saying our prayers. I was very sad thinking about you. But then I remembered that my gram is there with you. I'm sure she know how much you mean to everyone and how special you are. I know she's watching you up there!!! She was the bestest gram ever to me growing up...giving me whatever I wanted and making me all the pizza I wanted! Shes there with you Lukey. I know your up there running around like a little mad man...you need someone to chase after you!! It made me feel so much better knowing that she is there with you, watching out for you, and giving you all the pizza you can eat!!! I miss you Lukey.... Love, Teri

Oh Lukey...so many people love you! I told you this all the time, but you have touched so very many lives! It is with such pride that I read the postings of your friends, relatives and very special, super fabulous pulmonologist. Don't you worry- I will tell him you loved him so much because it was evident how much he cared about you. You didn't mind the biPap mask b/c you knew it helped you. I mean, cmon, Dr Otteson gave you a trach and you still liked him! I had coffee with Dr. Leslie today and we talked a lot about you. I am so comforted knowing your troubles and suffering are over. Not a minute goes by that I don't think about you and wish you were here. Grammy Cracker told me that when she came home from work today there was a bumble bee hovering around the door to their house. Were you out visiting today? That made her day. Daddy went back to work yesterday and I know it wasn't easy for him. He looked forward to coming home and seeing you everyday, so all he had to come home to was me and Sadie. Sadie misses you too. She hasn't been eating well and is staying in bed late. She roams around the living room. I took her to the vet and they said she is grieving too. She misses you. Well, I will check in again soon. I love you, buggy! Love, Mommy

Dear Lukey, Do you know the meaning of your name? Luke is the "bringer of Light" and Luke is the "bringer of Morning"! What a beautiful, loving name your parents gave you. Luke is the name Jesus calls you by. You warm my heart, because in every picture, in every memory, in every minute of every day and every night, your light shines so brightly. Thank you for sharing your joy!

Dear Lukey, Do you know the meaning of your name? Luke is the "bringer of Light" and Luke is the "bringer of Morning"! What a beautiful, loving name your parents gave you. Luke is the name Jesus calls you by. You warm my heart, because in every picture, in every memory, in every minute of every day and every night, your light shines so brightly. Thank you for sharing your joy!

Hi Luke, You have touched so many people, I am one that you have touched deeply. Your perseverance and strength just as that "Bumble Bee" will always amaze me. You have shown us that miracles do happen we just need to stop and look around. Little angels are all around just waiting for us to notice, and you Luke are indeed one of those little angels. I have been so privileged and honored to have had to opportunity to meet you. I read something recently that has stuck with me. It goes something like this. "Perhaps they are not stars in the sky but rather openings in Heaven where our loved ones shine down to let us know they are happy." When I look into the night sky I will always think of you shining down on your Mom and Dad letting them know that you are okay. Love you, Karen

Hi Lukey! I'm so glad your mommy made this website so that I can get on here and leave you little notes and see the pictures of your happy smiling face. You always could melt a heart with that smile! I think about you all the time. I find myself so sad that you are gone, and also sad that I am so far away and I was not able to tell you goodbye. But I know that you know that I love you and that you are my favorite little man. I am so lucky to have gotten to be one of your nurses and have you in my life as well as your mommy and daddy. I learned so much from all of you and have so many happy memories. Remember when we all had Easter dinner together? I think of that now, and I picture you chowing down on mashed potatoes and gravy, yummy turkey, and gooey sticky buns! I also picture you bouncing on the clouds, swinging on the swings, and smiling and giggling without a care in the world! I am happy when I picture you that way because I know you must be so joyous. I know that you are always watching over your mommy and daddy and helping them through each day. They sure do miss you Lukey. Continue to look after them and let them feel your presence and your love. I miss you! Love, Amanda

I love you so much and feel a sense of relief for you mommy and daddy that they know you aren't hurting anymore.......keep in touch with your mommy and let her feel you when you can.....i know you are so busy playing and eating all those goodies god makes for you......well baby, we'll talk again love you aunt robin

Oh baby, I'm so glad you aren't suffering any longer......please watch over mommy and daddy each and every day, i know you do.......sweetheart you are a blessing and i'll keep in touch with you..... Love Aunt Robin

Hi Lukey, I miss those wonderful smiles that you would have for me in clinic. I suppose I was not a very fun friend especially when I was trying to get you to wear that darn BiPAP mask, but despite that you still had a big smile for me (sometimes it took me tickling your armpits, but I got one nonetheless). I keep your picture in my office to remind me of how much I loved seeing you and your family. I am truly blessed to know you. Keep smiling. Jonathan Spahr

Hey Lukey! We sure miss you here, but know that you are enjoying the presence of Jesus. Thank you for letting me get to know you over the last year - you touched so many people here. You are blessed with great parents that miss you more than you could know. As I tyoe this, I am listening to "Abide With Me" - a great hymn that I am sure the angels sing to you! You are so special and your memory will always live on. Thanks for fulfilling the purpose God had for you here. Love, Jackie

Hi Lukey, Honey I know that we never a had a chance to meet but my name is Missy and once upon a time ago your Mommy was my best friend. Lukey you have touched my heart and my little boy Bailey's heart so much. My Bailey said that if you get scared not to worry because his Grandma Flo will watch out for you. Enjoy a big old ice cream cone with your cousin Noah and have fun on the swings. Watch over your Mommy and Daddy because they miss you so much. Love, Missy

Dear Lukey, Though I never got to meet you, you touched my heart. To see your smile in all those wonderful pictures, brought great happiness to me. You have amazing parents that care for you. You left a huge legacy behind and inspired many people. Thank you for all of that. Simran Parwani

Dear Luke- It is amazing what a little boy of two can accomplish in his life- you brought so much love and strength even to those of us you did not know. Your Mother said that she reads our letters to you. Your parents were so wonderful to allow us to know you, we promise you that we will take care of them as best we can. Tickle Julia in her dreams for me! Vicki Kisslinger

Hi Tiny....I saw our friend Peg yesterday and she brought by a few pictures she took of you a few days before you left us. I cried so much to see you chewing on that little hand of yours. It is hard to look at pictures of you...i love to look at you but it makes me sad b/c i want you back. I hope the sun is shining on you and you are having fun, worry free days. I love you baby. Love, Mommy

Upon my cheeks tears that I can't help but cast fall. But a happiness lurks in my heart that I cannot live without, for you are in a better place. You must know that you have wonderful parents. though i only met you once, I LOVE YOU LUKEY! Jessica Gorgas

Lukey, I just hope that you know that your parents are some of the greatest people that could have cared for you. I hope that you swing on that fanciful swing of yours and that you still look down upon your mother and father, for I know that they deserve it. Upon my cheeks are tears that I can't help but cast, but in my heart is a happiness that livens my soul. Though I only met who once, I love you Lukey! Jessica Gorgas

Hi Tiny.....Just wanted you to know I miss you so so so much. I found a great bumble bee charm that should be arriving in the mail any day now. 1 for me and 1 for Grammy Cracker. She misses you lots too. I am going to add it to the special "Lukey" bracelet I created with all charms just for you. I love you so much and it so hard to face each day without you. I hope you are doing okay. I love you! Love Mommy

I've been picturing you bouncing on clouds and running around the playground with your new friends. We miss you so much but know that you have a very special job to do as mommy and daddy's guardian angel. Thank you for sending all the sunshine last week to let us know you were ok and having fun. I'll think of your big smile every time I see the sun shining through the colorful fall leaves - Love you!

Dear Lukey, I miss you so much, and think about you every day! I had so much fun playing with you. All those pictures you painted with your little hands were beautiful. Do you remember when we sang the Crocodile song together? That was fun wasn't it? I have so much memory with you. You were the strongest little boy I ever seen. And your Mommy and Daddy truly are the best parents. You know I wave and send kisses to you every time I drive at your house. And I know you smile at me with that cute smile and send me kisses too. I thank to your Mommy to create this website and make availbale to connect you and see your pictures. Love you Lukey! Krisztina

Lukey, I have so many wonderful memories of you. I was so excited to watch you do things for yourself, such as activate your toys, or bring one of your chewies to your mouth. By far, the best part of any session with you though was to see your smile. Mommy and daddy were best of course at knowing how to get you to smile. If I was able to see even one of those smiles before I left you, I would feel so good. Your smile I suppose was therapy for me. I am so blessed to have known you while you were here. You touched many more hearts in your short time than many of us will touch in a lifetime. It is hard for me to believe that you truly aren't here on earth with us anymore. Reality hits me at odd moments though, hearing a song on the radio, or now, looking at your pictures. I miss you very much and you will always hold a very special place in my heart. You will never be forgotten, forever loved. Mary Ann

Lukey, I went to bed last night looking at your picture, crying my eyes out. What I would give to hold you again, to rub your hair and kiss your nose. I miss you more than words could ever say. I know Daddy misses you too. Don't forget to cheer for Daddy's team today- that cheer used to make your eyes light up and smile that big smile of yours. GO P, GO I, GO P-I-TT. We love you and wish you were here. Love, Mommy

Luke may the peace, serenity, and strengh that you have now help your parents through this difficult time. I think of you often, even though, we never were able to meet each other.

Lukey left a legacy behind and surely left footprints on my heart. I didn't know Luke personally but caringbridge allowed me to know him and also know how wonderful of a mother (I already know his wonderful father) who stood behind him. Luke left lasting footprints on my heart and I have such admiration for strength that both you Kara & Jeff have displayed throughout this journey. I became the follower to Luke who was truely a leader. Throughout his time here day in and day out he has lead us all on a different path of life lessons, love and family. His legacy will continue to lead all of us, and I will continue to follow in that and think and pray for you both.

I am deeply sorry for your loss,what a precious beautiful angel

Dear Luke, I remember when we came over to your house and brought you a stuffed cookie monster. You smiled and almost seemed to laugh when we shook it and it said things like "Cookie!" and "Yum yum yum!" You were so absolutely adorable. We could see how much your mom and dad loved you, just by looking in thier eyes. You are a lucky little boy to have had them as parents. I know you will be watching over them. I feel blessed to have known you, Luke. We will all miss you. Love, The Fettings

I am thinking of you right now Lukey. I miss you so much. It is one week ago that you left us and it feels like moments. I would give anything to be able to hold you right now, to see your smile, or just watch you sleep. I love you Tiny.